A new day has come!
When Jakob got diagnosed our hearts broke in so many pieces. We thought we would never recover when we learned we might lose him at age 2.
Newsletter Articles
Can you set the price on a child’s life?
When Seersha was born an investigational gene therapy, a one-time procedure that the researchers say may provide lifelong results was only available in the United States through a waitlist at The University of California Los Angeles (UCLA).
She’s just so joyful
This month we talked with Shayla, the mother of Seersha. Shayla and her family were forced to put their lives on hold as they waited
Giving Tuesday and Year End Appeal
Our November 28th, Giving Tuesday campaign was a triple success thanks to all of our generous donors.
Be a Community Fundraiser
We are so grateful to all our community members who have shown their willingness to “Pay it Forward”.
I had prepared myself to accept that I probably wouldn’t ...
On my second date with my now husband, I probably told him “I’m not going to be able to have kids”
We always wanted a big family
Marcia and Ryan always wanted a big family and today they have one.
You Really Do Need a Will
Have you ever thought: “Do I really need a will? It feels kind of creepy to think about that.” If so, you’re not alone. 66% of Americans do not have a valid will.
Alexa Celebrates Her Life Day by Giving to SCID Angels
Alexa has RAG1 SCID and received a transplant from a matched unrelated donor after being picked up by the Newborn Screening Test in Illinois.
